Promoting independence, preventing dependency

There are major pressures on social care funding for people with learning disabilities. It is unsustainable to continue working in the same way. The need to promote independence and prevent the need for social care for people with a learning disability is urgent. The purpose of this paper is to highlight key issues, stimulate debate and strengthen the evidence base.

The paper takes evidence from research, literature reviews, statistics and policy debates. It illustrates key points with case studies. The argument for change has been developed in discussion with key stakeholders including the chief executive of a leading self-advocacy organisation.

Demand is increasing whilst funding is reducing. Policy, practice and evidence on prevention of the need for social care for people with a learning disability are underdeveloped. Nevertheless, there are many examples of good practice, and of emerging opportunities for local partnerships to work together to build a new approach.

Research on the benefits and costs of prevention of social care for people with a learning disability is underdeveloped. There is a need to extend the evidence base on the range of interventions and their effectiveness.

The paper argues for a step change in culture, practice and the focus of research.