Research on health care experiences of people with disabilities: Exploring the social organization of service delivery

Abstract

This paper discusses the conceptual framework of a community-based, participatory, research project in Victoria, BC, Canada, in which people with disabilities and health care providers work together to understand the health care experiences of people with disabilities. Learning together is assumed to be a useful precursor to taking effective action, in the context of explicitly more “inclusive” health care planning (a goal of local health care reform). The paper argues that to offer useful insights for action by and for people with disabilities who are health care clients, the social organization of their actual experiences needs to be explored and critically analyzed. To do this, Dorothy Smith's (1987, 1990) institutional ethnography is employed and its use explained in the paper.

Citation

Campbell, M.L. (2000), "Research on health care experiences of people with disabilities: Exploring the social organization of service delivery", Altman, B.M. and Barnartt, S.N. (Ed.) Expanding the Scope of Social Science Research on Disability (Research in Social Science and Disability, Vol. 1), Emerald Group Publishing Limited, Leeds, pp. 131-154. https://doi.org/10.1016/S1479-3547(00)80008-1