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Co-design and development of a multi-component anxiety management programme for people with an intellectual disability

Daniel James Acton (Community Learning Disability Services, Cheshire and Wirral Partnership NHS Foundation Trust, Chester, UK; Centre for Autism, Neurodevelopmental Disorders and Intellectual Disability (CANDDID), Chester, UK and Chester Medical School, University of Chester, Chester, UK)
Robert Waites (Cheshire and Wirral Partnership NHS Foundation Trust, Chester, UK)
Sujeet Jaydeokar (Learning Disability Neurodevelopmental Disorders and Acquired Brain Injury Services, Cheshire and Wirral Partnership NHS Foundation Trust, Chester, UK; Centre for Autism, Neurodevelopmental Disorders and Intellectual Disability (CANDDID), Chester, UK and Chester Medical School, University of Chester, Chester, UK)
Steven Jones (Chester Medical School, University of Chester, Chester, UK)

Advances in Mental Health and Intellectual Disabilities

ISSN: 2044-1282

Article publication date: 13 January 2023

Issue publication date: 15 February 2023

391

Abstract

Purpose

This paper aims to understand the lived experience of people with intellectual disability of their anxiety and of being co-design partners in developing a multi-component approach to the management of anxiety.

Design/methodology/approach

The development of an anxiety manual and programme was part of a service development which allowed existing and established psychological therapies to be adapted for people with intellectual disability. A qualitative approach was used to better understand the views of people who experienced anxiety on a daily basis. The feedback generated was used to make modifications to the manuals and the anxiety management programme.

Findings

The study has demonstrated the value of involving people with intellectual disability in the co-production of an anxiety management programme. Additional findings identified the real-life challenges and experiences of the impact anxiety has on people’s lives.

Originality/value

To our knowledge, this is the first study to involve people with intellectual disability in developing an anxiety management programme as co-production partners. This paper underlines the value of understanding and involving people as co-production partners in developing clinical interventions.

Keywords

Acknowledgements

Ethical Information: The study was approved through the Trust’s research ethics approval process. The data was extracted and anonymised from the standard electronic patient record system used in routine clinical care. According to the Health Research Authority algorithm (see http://www.hra-decisiontools.org.uk/research/), this study was not defined as research and therefore did not require submission to the Integrated Research Application System.

The authors thank the co-production partners for their valuable feedback in developing the programme. Additionally, the authors thank Clinical Psychologists Drs Ceri Woodrow and Jonathan Williams for their support in the adaptation process.

Citation

Acton, D.J., Waites, R., Jaydeokar, S. and Jones, S. (2023), "Co-design and development of a multi-component anxiety management programme for people with an intellectual disability", Advances in Mental Health and Intellectual Disabilities, Vol. 17 No. 1, pp. 26-36. https://doi.org/10.1108/AMHID-04-2022-0017

Publisher

:

Emerald Publishing Limited

Copyright © 2022, Emerald Publishing Limited

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