Previously published as: Advances in Mental Health and Learning Disabilities
Online from: 2010
Subject Area: Health and Social Care
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|Title:||Establishing a database for proactive screening of adults with Down's syndrome: when services work together|
|Author(s):||Ben Hobson, (Assistant Clinical Psychologist, Wolverhampton City Primary Care Trust, Wolverhampton, UK), Diane Webb, (Strategic Health Facilitator, Wolverhampton City Primary Care Trust, Wolverhampton, UK), Lynda Sprague, (Community Nurse, Wolverhampton City Primary Care Trust, Wolverhampton, UK), Moni Grizzell, (Senior Research Nurse (Older Adults), Wolverhampton City Primary Care Trust, Wolverhampton, UK), Cliff Hawkins, (Consultant Clinical Psychologist/Head of Psychology for Adults with Learning Disabilities, all at Wolverhampton City Primary Care Trust, Wolverhampton, UK), Susan M. Benbow, (Visiting Professor of Mental Health and Ageing in the Faculty of Health & Sciences, Staffordshire University, Stafford, UK)|
|Citation:||Ben Hobson, Diane Webb, Lynda Sprague, Moni Grizzell, Cliff Hawkins, Susan M. Benbow, (2012) "Establishing a database for proactive screening of adults with Down's syndrome: when services work together", Advances in Mental Health and Intellectual Disabilities, Vol. 6 Iss: 2, pp.99 - 105|
|Keywords:||Collaboration, Dementia, Down's syndrome, Intellectual disability, Learning disabilities, Screening, Service improvements|
|Article type:||Research paper|
|DOI:||10.1108/20441281211208464 (Permanent URL)|
|Publisher:||Emerald Group Publishing Limited|
|Acknowledgements:||The authors wish to thank Drs S. Bhattacharyya, A. Griffiths and G.A. Gomez for their support and contributions throughout this project. This project was funded as a service improvement project by Wolverhampton City PCT.|
Purpose – This paper describes a service improvement project with two aims: to identify and screen all adults with Down's syndrome aged over 30 years in a defined locality using a standardised instrument to establish functional baselines; and to set up a database to facilitate early diagnosis of dementia in this population.
Design/methodology/approach – An assistant psychologist used a standardised instrument to screen participants who were identified through contact with health, social, and third sector, and housing services.
Findings – Eligible people were identified and screened using an informant-based measure. Three groups were identified: group 1 showed no significant change; group 2 showed significant change but no signs of dementia; and group 3 showed significant change plus signs of dementia. People with suspected dementia were referred on for further investigation/assessment and supportive services.
Practical implications – Terminology is important in engaging families in a screening project, as is the opportunity to provide information. A proactive screening project can be established by employing working partnerships between intellectual disability and older adult services to aid diagnosis.
Originality/value – Adults with Down's syndrome aged over 30 years in a defined locality can be identified through contact with health, social, and third sector, and housing services. Those identified can be screened using a standardised instrument and a database of screening results established in order to establish baselines against which future re-screening can be conducted. Partnership working between older adult mental health services and intellectual disability services can improve the diagnostic service to adults with Down's syndrome.
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