Ableism

, 20, 92, 127

femininity as response to

, 95–98

Accelerated disablement

, 36

Acquired disability

, 2

Activities of Daily Living (ADLs)

, 185

Adaptation

, 21

Adolescence

, 60–61

Adulthood

, 95

Adultification

, 129

Age effects

, 170

Agency

, 5, 18, 22, 36, 41–42

principles

, 18–20

use of

, 53–54

Age–period–cohort effects

, 15–16

Aging

, 12

scholars

, 13

Alzheimer’s disease

, 22

American Community Survey (ACS)

, 22

American Time Use Survey (ATUS)

, 184, 188

Americans with Disabilities Act (ADA)

, 8, 15, 39, 133

Americans’ Changing Lives (ACL)

, 169

Anthropologists

, 3

Barrier(s)

, 15

Biographical disruptions

, 39–40

Biographical interviews

, 110

French disability policy

, 112–114

to study policy reception

, 111–114

Biography

, 111–112

Bivariate analyses

, 190–195

Black Americans

, 32–33

Care

adjusting to

, 160

entering care

, 154–156, 158, 161

exiting care

, 156, 162

maintaining care and autonomy

, 155–156, 158, 160

managing

, 162

partner overload

, 156

Care work

, 128–129

Caregiving

career

, 152

relationships

, 146

roles

, 4

types

, 152

Centers for Disease Control and Prevention (CDC)

, 12

Cerebral palsy

, 12

Change

, 131

Childhood

, 92

Children and Young Adults surveys (CNLSY)

, 132

Chronic health conditions

, 92–93

Chronic illness

, 146

Chronological age

, 184

Class

, 59–61

Classism

, 17

Cognitive disabilities

, 22–23

Cognitive disability

, 2

Cohort

, 173

Cohort effects

, 14

College completion

, 7–8

Congenital disability

, 2

Constrained care partners

, 156–160

Constrained caregiving

, 8

Context

, 7

Continuity

, 8

Continuous ambulatory peritoneal dialysis

, 5

Continuous-time, discrete-state event history modeling

, 169, 173–174

Convention on the Rights of Persons with Disabilities (CRPD)

, 15

Couples’ transitions

, 8

Cumulative dis/advantage

, 16, 169

Cumulative inequality theory

, 36

Current Population Survey (CPS)

, 188

Daily living

, 8–9

Daily time

, 8–9

Deinstitutionalization movement

, 15

Demographers

, 3

Demyelination

, 31–32

Depression

, 31–32

Developmental disability

, 22

Developmental psychologists

, 3

Diagnosis

, 5–6

Diagnosis pathways

, 5–6, 30

Diagnostic delay

, 34–35

Disability gap

, 184

analysis

, 189–190

data and methods

, 188–190

literature review

, 184–187

measures

, 188–189

results

, 190–202

Disability Rights Movement (DRM)

, 15

Disability-related educational policies

Maryse Cloutier

, 115–116

reception of

, 114–118

Victor Jaucourt

, 117–118

Disability/disabilities

, 2–4, 12, 51, 91, 133, 171

among salient identities

, 52

identity

, 6–7, 18

impact on siblings and challenges of disabled sibling research

, 130–131

invoking disability

, 61–62

policy

, 108

scholars

, 13

status

, 12–13

studies scholars

, 2–3

Disabled adolescents

, 16

Disabled adults

, 17

Disabled people

, 51

Disabled sibling

, 131

analysis

, 134–135

data and methods

, 131–134

research questions and hypotheses

, 131

results

, 135–139

Disabled young adults approach gender

, 92

findings

, 95–101

interviewee demographics

, 94

methods

, 92–95

Discrimination

, 117

Disease modifying therapies (DMTs)

, 35

Disparities

, 5–6

Doing disability

, 92

Doing gender

, 91–92

Down syndrome

, 12

Drift hypothesis

, 168

Ecological applications of resilience

, 21

Economics of disability

, 129

Economists

, 3

Education

, 114–115

Educational policy

, 119–120

Elder’s model

, 54

Embodied/embodiment

, 91

Emotion work

, 162

Emotional men accommodating femininity

, 100–101

Emphasized femininity

, 91

Employer group health (EGH)

, 15–16

Employment

, 108

End stage kidney disease (see Kidney failure)

End stage renal disease (ESRD) (see Kidney failure)

Epidemiological studies

, 32

Epstein–Barr virus (EBV)

, 32

Ethnicity

, 168

Expectations

, 92

Experience

, 168

Families of disabled children

, 127–129

Femininity

emotional men accommodating

, 100–101

as response to ableism

, 95–98

tough women resisting

, 98–100

Feminist disability perspective

, 5–6

Feminist intersectional disability framework

, 34

Feminist theorists

, 91–92

Flexibility

, 21

French disability policy

, 112–114

Functional disability

, 172–173, 176

Gender

, 59, 61, 91, 129

and disability

, 187

roles

, 128–129

Generation

, 170

Gerontologists

, 13

Great Recession

, 8, 169, 171

Health and Retirement Study (HRS)

, 23

Health disparities

, 30–31

Health outcomes

, 179

Hegemonic masculinity

, 91

Hemodialysis

, 5

Historical time and place

, 36, 38–39

History

, 6

Human agency

, 18–19

Identity/identities

to inequalities

, 51–53

labels to describe inequalities

, 56–59

salience

, 52

Illness trajectory

, 31–32

Impairments

, 4

Inclusion

, 114

Income insecurity

, 8

Individualized Education Program

, 127

Individuals with Disabilities Education Act (IDEA)

, 15

Inequalities

, 51

identities to inequalities

, 51–53

methods

, 54–56

reflexivity through life course perspective

, 53–54

results

, 56–64

studies

, 55

Inequities

, 30–31

Instrumental Activities of Daily Living (IADLs)

, 185

Intellectual disability

, 22

Interdependent/interdependence

, 5

International Classification of Functioning Disability and Health (ICF)

, 2–3, 14

Intersectional approaches

, 17–18, 41

Intersectional feminism

, 37–38

Intersectional feminist disability approach

, 38

Intersectional frameworks

, 37–38

Intersectionality

, 37–38, 52

Intrastate confinement

, 19

Invisible disability

, 2

Involuntary job loss

, 172

Job insecurity

, 167–168

Job precarity

, 8

Kidney failure

, 4–6

Leisure time

, 185

Life course

, 109–110, 168, 184–185

analysis

, 3

analytic strategy

, 173–174

approach

, 7

concepts and methods

, 168

cube

, 15–16

data

, 172–173

disability and work precarity

, 171

Great Recession, and precarious work

, 169–171

lens to study of impairment and disability

, 4

method

, 172–174

paradigm

, 3–4

results

, 174–176

scholars

, 3

standpoint

, 108

Life course perspective

, 3–5, 36–37, 129, 147–148

reflexivity through

, 53–54

Life course theory

, 5–6, 13–14

agency, linked lives, and life-span development

, 18–22

principles

, 13

time, place, and timing

, 14–18

Life cycle

, 53

Life stage

, 2

Life stories

, 111

Lifespan

, 2

Lifespan development

, 5, 18, 22

principles

, 20–22

Linked lives

, 5, 7–8, 18, 22, 36, 40–41, 54, 127–128, 148

Listwise deletion

, 134–135

Lived experience

, 7

Location in time and place

, 148

Logistic regression tests

, 134

Longitudinal OLS regression models

, 173

Longitudinal regression analysis

, 169

Macro-level forces

, 7

Magnetic resonance imaging (MRI)

, 31–32, 39

Marginalization

, 2–3

Masculinity

, 91

Master status

, 52

Medicaid programs

, 19

Medical sociology

, 20

Mental health disabilities

, 22–23

Micro-level effects

, 7

Mild disability

, 2

Milestone legislation

, 39

Moderate disability

, 2

Mothers with disability

, 187, 201

Multiple sclerosis (MS)

, 5–6, 31, 35

agency

, 41–42

diagnosis, treatment, and diagnostic delay

, 34–35

disease characteristics, prevalence, and disparities

, 31–34

historical time and place

, 38–39

intersectional frameworks

, 37–38

life course perspective

, 36–37

linked lives

, 40–41

timing of lives

, 39–40

Multivariate analyses and interaction results

, 195–201

Nagi’s Disablement Model (1965)

, 14

Narratives

, 95

National Health and Interview Survey (NHIS)

, 22

National Kidney Foundation of Georgia (NKFG)

, 7

National Longitudinal Survey of Youth 1979 (NLSY79)

, 132

Naturalized care partners

, 152–156

Naturalized caregiving

, 8

Nonbinary individuals

, 90

Nonnormative transitions

, 16

Off time transitions

, 16

Omnibus Budget Reconciliation Act (OBRA)

, 15

Openness

, 21

Oppression

, 2–3

Pace

, 40

Parental time

, 128

Pathway

, 3

Pattern

, 40

Perceived income insecurity

, 172

Perceived job insecurity

, 172

Period effects

, 14, 170

Peritoneal dialysis

, 5

Personal care attendant (PCA)

, 19

Physical disability

, 2, 23

Physical health

, 4

Physiological process

, 37

Place

, 5, 14, 18

principle

, 14–16

Policy making

, 7

Policy reception

biographical interviews to study policy reception

, 111–114

reception of disability-related educational policies

, 114–118

state and life course

, 109–110

Political scientists

, 3

Precarious work

, 169–171

Primary progressive MS (PPMS)

, 32

Principles

, 5

Progressive-relapsing MS (PRMS)

, 32

Psychological applications of resilience

, 21

Public policies

, 7, 109–110

Qualitative studies

, 130

Race

, 59–61

Racism

, 17

Reflexivity through life course perspective

, 53–54

Regression models

, 134–135

Rehabilitation

, 146

Relapse-remitting MS (RRMS)

, 32

Relationships

, 19–20

Resilience

, 20–21

Resistance

, 18–19

Resistant care partners

, 160–162

Resistant caregiving

, 8

School integration

, 114–115

Secondary progressive MS (SPMS)

, 32

Self-agency

, 4

Self-care

, 156

Self-identifications

, 53

of disability

, 52

Self-perceptions

, 52–53

Sensory disability

, 2

Separate schooling

, 7

Sequence

, 40

Setting

, 8

Severe disability

, 2

Sexism

, 17

Sibling

care

, 128–129

disability

, 130

Skype

, 93

Social class

, 8

Social convoy model

, 40–41

Social determinants of health

, 29

Social historians

, 3

Social location

, 30

Social marginalization

, 16–17

Social model of disability

, 127

Social movements

, 15

Social networks

, 40–41

Social participation

, 184

Social pathways

, 7–8

Social Security Administration (SSA)

, 15

Social selection hypothesis

, 168

Social structure

, 36

Social support

, 39

Social trajectories

, 16–17

Social workers

, 3

Social/cultural prejudice

, 16–17

Sociologists

, 3

Specific learning disorders (SLDs)

, 54–55

Spinal cord injury (SCI)

, 146

caregiving types and caregiving career

, 152

data collection and analysis

, 149–151

design

, 148–149

findings

, 151–162

life course perspective

, 147–148

married women with

, 147

methods

, 148–151

naturalized care partners

, 152–156

sample and setting

, 149

sample characteristics

, 151–152

Spoiled identity

, 6–7

Spousal caregiving

, 146

Springboard program

, 7, 15, 17

Stigma

, 6

Stress

, 162

Structural ableism

, 16–17

Structural inequalities

, 184

Structural influences

, 53–54

Structure

, 4

Subjective inequalities

, 53

Supervision

, 128

Supplemental models

, 201–202

Swift diagnosis

, 35

Systemic oppression of disabled people

, 16–17

Theory

, 22

Time

, 5, 14, 18

principle

, 14–16

Time use

, 184–185

approach

, 185

disability and

, 185–187

Timing

, 14–18

and age effects

, 5

of lives

, 36, 39–40

in lives

, 148

principle

, 16–18

Trajectories

, 39

Transitions

, 39

indicators

, 8

process

, 6

Traumatic brain injury (TBI)

, 22

Turning points

, 39, 51

in disabled people’s lives

, 54

in interpretations

, 62–64

United States Renal Data System (USRDS)

, 5–6

Variance inflation factors (VIFs)

, 190

Verbrugge’s and Jette’s Disablement Process (1994)

, 14

Visible disability

, 2

Vocational Rehabilitation (VR)

, 15

Weathering

, 37

White Americans

, 33

Wisconsin Longitudinal Survey (WLS)

, 131

Women with disabilities

, 187

Women with physical disabilities

, 16

Work precarity

, 171

World Health Organization (WHO)

, 2

Young adulthood

, 3, 91

analysis

, 8–9

development

, 3–4

findings

, 9–13

indicators of dimensions of young-adulthood development

, 10–11

interview guide

, 8

isolation from age peers and questioning

, 12–13

kidney failure

, 4–6

methods

, 7–9

perceived condition-related stigma and spoiled identity with kidney disease

, 6–7

perceived stigma/spoiled identity

, 12

study cohort characteristics

, 9–10

study cohort recruitment

, 7

Young disabled people

, 3