Private Data Sources, Data Privacy and Data Simulations for Palliative LHS

Abstract

This chapter more clearly identifies the distinction between Electronic Health Record (EHR) and Electronic Medical Record (EMR), and states their value in obtaining individual-level data. Synthetic medical records may be used as a surrogate for EHR data in order to ensure digital data privacy is maintained during the development of the LHS. Synthea is an open-source simulation tool available through GitHub.¹ Extensive descriptive analysis of synthesized data is provided as a foundation for the analysis in Chapter 7.

Citation

Miori, V.M. (2023), "Private Data Sources, Data Privacy and Data Simulations for Palliative LHS", Miori, V.M., Miori, D.J., Burton, F. and Cardamone, C.G. (Ed.) Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine (Studies in Media and Communications, Vol. 23), Emerald Publishing Limited, Leeds, pp. 79-90. https://doi.org/10.1108/S2050-206020230000023006